Patient education aimed at adults with intellectual disabilities and simultaneous diabetes for self-care of diabetes

Diabetes is a condition that requires lifelong adaptation to healthy living habits and, as needed, to medication. Diabetes is more common in people with intellectual disabilities than in the rest of the population. For people with intellectual disabilities and diabetes to have a good quality of life, they need, like other patient groups with diabetes, education and support for self-care. For this purpose, a patient education adapted to the target group for self-care is needed.

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SBU Enquiry Service

Consists of structured literature searches to highlight studies that can address questions received by the SBU Enquiry Service from Swedish healthcare or social service providers. We assess the risk of bias in systematic reviews and when needed also quality and transferability of results in health economic studies. Relevant references are compiled by an SBU staff member, in consultation with an external expert when needed.

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Published: Report no: ut202008 Registration no: SBU 2018/563

Question

What effect on diabetes and on the quality of life of the individual has adapted educational efforts for self-care of diabetes for adults (≥18 years) with intellectual disabilities and diabetes?

Identified literature

No relevant systematic review was identified but one primary study was identified [1]. The primary study was not assessed for risk of bias.

References

  1. Taggart L, Truesdale M, Carey ME, Martin-Stacey L, Scott J, Bunting B, et al. Pilot feasibility study examining a structured self-management diabetes education programme, DESMOND-ID, targeting HbA1c in adults with intellectual disabilities. Diabet Med 2018;35:137-46.

Literature search

PubMed via NLM 2019-09-05
Patient education aimed at adults with intellectual disabilities and simultaneous diabetes for self-care of diabetes
The search result, usually found at the end of the documentation, forms the list of abstracts.; [MeSH] = Term from the Medline controlled vocabulary, including terms found below this term in the MeSH hierarchy; [MeSH:NoExp] = Does not include terms found below this term in the MeSH hierarchy; [MAJR] = MeSH Major Topic; [TIAB] = Title or abstract; [TI] = Title; [AU] = Author; [TW] = Text Word; Systematic[SB] = Filter for retrieving systematic reviews; * = Truncation; “ “ = Citation Marks; searches for an exact phrase
Search terms Items found
Population:
1. "Intellectual Disability"[Mesh] or "Developmental Disabilities"[Mesh] or "Mentally Disabled Persons"[Mesh] OR  "Education of Intellectually Disabled"[Mesh] or developmental disabilit*[tiab] or developmental disorder*[tiab] or Down syndrome[tiab] or Down’s syndrome[tiab] or mental deficienc*[tiab] or mental disabilit*[tiab] or mental retardation[tiab] or mentally retarded[tiab] or intellectual and developmental disabilit*[tiab] or intellectual disabilit*[tiab] or intellectually disable*[tiab] 147011
2. "Diabetes Mellitus"[Mesh] or diabetes[tiab] or diabetic[tiab] or prediabetes[tiab] or pre-diabetes[tiab] 652789
3. 1 and 2 1499
Intervention:
4. "Patient Education as Topic"[Mesh:NoExp] or coaching[tw] or education*[tw] or health-coach*[tw] or intervention*[tw] or managing*[tw] or management[tw] or program*[tw] or "Self-Management"[Mesh] OR "Self Care"[Mesh] or self-manage*[tw] or self-monitor*[tw] or self-care[tw] 3443211
Combined sets/Limits
5. 3 and 4 284
6. 3 and 4 Filters activated: Publication date from 2014/01/01, Danish, English, Norwegian, Swedish 262
Final   262

 

PsycINFO via Embase 2019-09-05
Patient education aimed at adults with intellectual disabilities and simultaneous diabetes for self-care of diabetes
Search terms Items found
Population:
1. ( DE "Intellectual Development Disorder" OR DE "Anencephaly" OR DE "Crying Cat Syndrome" OR DE "Down's Syndrome" OR DE "Tay Sachs Disease" Or DE "Developmental Disabilities" OR DE "Specific Language Impairment" ) OR ( TX ("developmental disabilit*" or "developmental disorder* " or "Down syndrome" or "Down’s syndrome" or "mental deficienc*" or "mental disabilit*" or "mental retardation" or "mentally retarded" or "intellectual disabilit*" or "intellectually disable*") ) 128444
2. ( DE "Diabetes" OR DE "Diabetes Insipidus" OR DE "Diabetes Mellitus" OR DE "Type 2 Diabetes" ) OR ( TX (diabetes or diabetic or prediabetes or pre-diabetes) ) 33584
3. 1 and 2 461
4. ( DE "Client Education" or DE "Health Education" or DE "Self-Care Skills" ) OR ( TX coaching or education* or health-coach* or intervention* or managing* or management or program* or self-manage* or self-monitor* or self-care ) 1669188
Combined sets/Limits
5. 3 and 4 179
6. 3 and 4 Limiters  - Peer Reviewed; Language: Danish, English, Norwegian, Swedish 125
Final   125
The search result, usually found at the end of the documentation, forms the list of abstracts.; au = Author; MeSH = Term from the Medline controlled vocabulary, including terms found below this term in the MeSH hierarchy; this term only = Does not include terms found below this term in the MeSH hierarchy; :ti = Title; :ab = Abstract; :kw = Keyword; * = Truncation; “ “ = Citation Marks; searches for an exact phrase; CDSR = Cochrane Database of Systematic Review; CENTRAL = Cochrane Central Register of Controlled Trials, “trials”; CRM = Method Studies; DARE = Database Abstracts of Reviews of Effects, “other reviews”; EED = Economic Evaluations; HTA = Health Technology Assessments

Cinahl via ebsco.com 2019-09-06

Patient education aimed at adults with intellectual disabilities and simultaneous diabetes for self-care of diabetes

/de = Term from the EMTREE controlled vocabulary; /exp = Includes terms found below this term in the EMTREE hierarchy; /mj = Major Topic; :ab = Abstract; :au = Author; :ti = Article Title; :ti,ab = Title or abstract; * = Truncation; ’ ’ = Citation Marks; searches for an exact phrase
Search terms Items found
Population:
1. (MH "Intellectual Disability+") OR SU ( "developmental disabilit*" or "developmental disorder* " or "Down syndrome" or "Down’s syndrome" or "mental deficienc*" or "mental disabilit*" or "mental retardation" or "mentally retarded" or "intellectual disabilit*" or "intellectually disable*" ) 35184
2. (MH "Diabetes Mellitus+") OR SU (diabetes or diabetic or prediabetes or pre-diabetes) 150307
3. 1 AND 2 281
Intervention:
4. (MH "Health Education")  OR (MH "Patient Education+")  OR (MH "Diabetes Educators") OR (MH "Diabetes Education")  OR SU ( coaching or education* or health-coach* or intervention* or managing* or management or program* or self-manage* or self-monitor* or self-care ) 810565
Combined sets:
5. 3 AND 4 78
6. 3 AND 4 Limiters - Peer Reviewed; Research Article; Language: Danish, English, Norwegian, Swedish 20
Final   20

 

Academic Search Elite, ERIC, Psychology and Behavioral Sciences Collection, SocINDEX with Full Text via ebsco.com 2019-09-06
Patient education aimed at adults with intellectual disabilities and simultaneous diabetes for self-care of diabetes
The search result, usually found at the end of the documentation, forms the list of abstracts.; AB = Abstract; AU = Author; DE = Term from the thesaurus; MM = Major Concept; TI = Title; TX = All Text. Performs a keyword search of all the database's searchable fields; ZC = Methodology Index; * = Truncation; “ “ = Citation Marks; searches for an exact phrase
Search terms Items found
Population:
1. TI ( ( ( "developmental disabilit*" or "developmental disorder* " or "Down syndrome" or "Down’s syndrome" or "mental deficienc*" or "mental disabilit*" or "mental retardation" or "mentally retarded" or "intellectual disabilit*" or "intellectually disable*" ) ) AND ( (diabetes or diabetic or prediabetes or pre-diabetes) ) AND ( ( coaching or education* or health-coach* or intervention* or managing* or management or program* or self-manage* or self-monitor* or self-care ) ) ) OR AB ( ( ( "developmental disabilit*" or "developmental disorder* " or "Down syndrome" or "Down’s syndrome" or "mental deficienc*" or "mental disabilit*" or "mental retardation" or "mentally retarded" or "intellectual disabilit*" or "intellectually disable*" ) ) AND ( (diabetes or diabetic or prediabetes or pre-diabetes) ) AND ( ( coaching or education* or health-coach* or intervention* or managing* or management or program* or self-manage* or self-monitor* or self-care ) ) ) 178
Combined sets /Limits
2. Limiters  - Scholarly (Peer Reviewed) Journals  
Final 1 AND 2 147
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